OK. I’m going to be honest. I’m having a bit of a hard time over here. I have 2 two-year olds (one with CP) and life is hard…and exhausting. I admit it. I’m struggling. So, instead of just feeling sorry for myself, I’m reaching out for help. From you. I have some questions and I’m hoping you can give me some answers or suggestions on how to make life easier.
Is anyone else’s CP kid having a hard time with sleep? I read a post here about E’s sleeping problems and it got me thinking about Ben. He used to be a champion sleeper…but now, not so much. He still sleeps through the night most nights of the week, but there are usually one or two where he wakes in the middle of the night crying. Sometimes a quick visit from Mommy or Daddy will comfort him but usually it doesn’t and he’ll cry on and off for a few hours. I think he’s uncomfortable and since he can easily reposition himself, he has trouble going back to sleep. But I’m not sure. Anyone out there with any similar experiences / stories?
Anyone else out there completely physically exhausted? I’m just looking for some company on this one…you know…the whole “misery loves company” thing. Ben is getting so heavy…he’s about 27 lbs now. And he’s so hard to hold…he doesn’t “hold on” the way a typically-developing child does. And he constantly wants us to walk him around holding onto his hands (instead of using his walker or crawling) and it’s just so hard on my body. That, combined with the lack of sleep mentioned above, has got me completely worn out.
What does the future hold? I know that no one can really answer this question. But I’m having a bit of a hard time (see 1 and 2 above) and need a bit of hope to hold on to right now. Ben is 27 months old. He’s been diagnosed with spastic diplegia. He can use his walker (just started this). He crawls on all fours, can get in and out of w-sit, and can pull to stand and cruise (with someone spotting due to balance issues). He’s classified as a Level 2 on the Gross Motor Function Classification System. Anyone out there with an older child that had a similar diagnosis / similar skills at this age that can shed any light on what the future may hold for him?
Does anyone have any suggestions on how to make life easier? Anyone come across a great idea or product that is impacting your child or your quality of life? I just know that you other moms out there have great ideas or have come across some great products that are making your lives easier. Please share them with me! I’m having a hard time right now and need all the help I can get. In particular, what are you using to transport your child (besides a stroller)? Maybe you’ve come across something that has been a great motivational tool for your child?
That’s all I can think of for now. I’m sure there are a thousand more questions out there but for now, this is enough.