Monday, March 19, 2012

Home





So yeah. We're home. Been home for 10 days now already. Sorry for the lack of blog posts, but after blogging so much while we were in Montreal, I just needed a break.

There is nothing like 7 weeks in a hospital 10 hours away to make home feel like heaven. Really. I think I'm still on a bit of a high. Every night I LOVE crawling into my own bed. And every morning, I LOVE getting into my own shower. I even enjoy getting groceries and washing dishes. Truly. I do.

Daniel is beyond thrilled that we are home. He's glad Ben is here, but primarily, he's happy to have his mommy home with him. I've been working some since I've been home. I work from home so that just means working in the office upstairs while Daniel and Ben are downstairs with the babysitter. Every so often, Daniel just pops in to make sure I'm still there...and that I'm not going anywhere. And almost every day, he tells me how much he loves me being home with him.

Ben is of course, happy to be home. But you know how kids are...they just live in the moment so I don't think he's feeling the high that I'm feeling.

Myself, I love seeing the changes in Ben now that we're here. He uses his walker WAY more than he did prior to the surgery. He hardly crawls anymore. And he doesn't seem to want to w-sit. He prefers to either sit in a chair or, if on the floor, sit in criss-cross.

He is more than happy to continue wearing his braces almost 24 hours every day. I thought that maybe once we got home, he'd complain about them. But nope. He doesn't at all.

In some ways though, reality has set in. At the hospital, I almost forgot about Ben's disability. I know...that doesn't make any sense. But rehab hospitals are made for kids with disabilities. There are other kids in wheelchairs and walkers and everything is made to deal with kids with disabilities.

The weather turned very springy over the weekend. So off we went to enjoy it outside. I was so excited to try Ben on his bike. Last year, I had got him a Mobo Mini...it's a recumbent bike for kids. It was a bit too big for him last year so I thought that it work for him FOR SURE this year. Well. Nope. Not so much. I'm not even sure why it doesn't work for him, but it doesn't.

So then, the reality of having a 4-year-old that can't walk started setting in again. Yes, he can walk with his walker. But he still needs to get stronger and walking outdoors on uneven ground is very difficult still. And his bike wouldn't work for him. I ended up in tears again.

I look forward to the nice weather getting here every year. And every year, I end up in tears because playing outdoors is so hard for my child. Daniel is riding his big boy bike like crazy and Ben is sitting in the wagon watching. It kills me.

Anyways...sorry this post turned into a bit of a downer. But it's how I've been feeling since I've been home...on a bit of a high and so happy to be home...mixed with some sadness and frustration that spring seems to always bring for me.

Since the bike incident, I have ordered a big trike for him (a Kettler) that I think will work really well. Let's hope so...

So yes. I am so very happy to be home again. As Ben tells everyone, "we were in Montreal for 50 nights!" I am so happy that Ben had his SDR and that it's now over and done with. I am enjoying the progress that we've already seen and look forward to even more!

Hopefully, more regular posts to come from now on...

- Posted using BlogPress from my iPad

4 comments:

  1. Oh I know that feeling so well - we'll be home and my daughter will be doing all sorts of amazing things and making excellent progress *for her* and I'll sort of forget everything else outside the walls. We'll go out and suddenly all that progress she made goes poof in my head. But you know, our kids are so strong and amazing too. I look forward to the years to come when they really get going!

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  2. HI CARY! I HOPE YOU HAD A GOOD BIRTHDAY.. GLAD TO HEAR THAT EVERYONE IS HAPPY TO BE HOME!!

    AS FOR THE BIKE SITUATION.. I UNDERSTAND YOUR FEELINGS ABOUT IT, BUT WHY NOT ASK BEN'S PHYSIO OR HIS SPECIALIST OR THE PEOPLE AT THE HOSPITAL WHAT TYPE OF BIKE THEY WOULD RECOMMEND FOR HIM.. THE BIKE HE USED AT THE HOSPIAL SEEMED TO WORK WELL WHY NOT GET ONE OF THOSE? JUST A THOUGHT!

    LOOKING FORWARD TO SEEING THE PROGRESSS

    MELISSA

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  3. It sounds hard. But you all are going to hang in there, and before you know it, you will look back and be amazed at the improvement. I remember recently realizing with shock that I hadn't thought about my little one's speech in several months, when previously we literally had a chart logging each individual word and we were in speech therapy for more years than I can count.

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  4. A home a place full of memories,happiness and sadness.It is a place that everyone unites to have a good relationship and obtaining dreams together.

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