Until a month ago, I did not know one single person (in real life) that had a child with CP. Not one. Just a month later, two moms I know have had one of their twins diagnosed with CP. This kind of blows me away.
Both of these women are moms of twins that I met through our local Moms of Multiples club. Until now, I was the only mom there that had a disabled child. And now all of the sudden, there are 3 of us.
I have reached out to these moms. Because that is what I would have wanted 18 months ago when I was first told that Ben had CP. I was desperate to connect with other moms that had been there. And because I couldn't find anyone to reach out to, I reached out online. And found all of you.
So far, I have just communicated with these moms via Facebook. We have traded emails. I have met both of them a few times either at playdates or our monthly Moms Night Out (all prior to diagnosis) but I do not know either of them very well.
All of us deal with this kind of news differently. So I'm trying not to scare these moms away by emailing them constantly or calling them at home. But I really feel that I have something to offer these moms. And I'm hoping that we can all be a support for each other.
So this is my question for you. What do you remember about those early days after the diagnosis? What did you want or need?