A couple of months ago, I told you that two twin mommies that I knew had had one of their twins diagnosed with CP. In that post, I asked for your help. I wanted to know what you would have wanted back in the early days after diagnosis. I wanted to reach out and help these moms, but I didn't want to overwhelm them either.
Well. In the weeks since then, I have connected with these Moms.
Initially we communicated through Facebook. In order to provide support without overwhelming them, I posted many photos and videos of Ben on my Facebook page. Basically providing them a way to look and find out about Ben, without having to ask questions.
CP awareness day was during that time. I posted facts and links about CP on my Facebook page over that weekend, in an effort to not just provide support to them, but to educate all those around me (and around Ben).
And they ate this information up. They devoured it. They shared it with their husbands and their families. They posted comments and asked questions.
Then they came out to a Mom's Night Out (sponsored by our Moms of Multiples Group) and they stayed late and asked questions. And we connected. We cried and we hugged.
After that, we had playdates. And shared even more information. About local programs and service providers. And our kids played. I even loaned out a few toys that were helped Ben to sit in the early days.
It's truly been amazing. The connection between us was instant. And forever. We have a bond that is unique and special.
I am thrilled that Ben will know other kids in a similar situation. With CP. With a typically-developing twin.
I am thrilled that Daniel will know other kids in a similar situation. Typically-developing. With a twin with CP.
But I am also happy for me. I needed this. At this stage, they can't really answer any of my questions about botox or serial casting. But that's OK. That's what I have you guys (and good 'ole Google for). But they understand what it's like to be in MY shoes. They get it. And that feels good.