I never know what to say to people when they ask me "how's Ben doing?" They are very pointedly asking me about Ben...because he has CP. But yet, I never know how to answer them.
Are they just asking to be nice? Or do they really want to know? I can never figure that out. I pretty much just say "Oh...he's doing great". And leave it at that. Maybe show off a recent picture or two.
Do they really want to know all the details of having a kid with CP?
I mean I could tell them that he's made virtually no progress in 6 months due to the vicious struggle we're having with his spasticity at the moment. We're in a constant round of botox and casting just to keep up with the status quo. We're supposed to be working on independent standing and maybe even an independent step or 2, but we're just stuck trying to keep him from getting so tight he can't even walk in his walker.
I could tell them that every morning Ben asks me "where are we going today Mommy?" because he knows that we're very likely going off to some appointment with some doctor or PT or OT.
Or do I tell them that I get this feeling that we're about to be referred to an orthopedic surgeon and that surgery scares me to death?
I don't know about you guys, but sometimes I wish there was a "special needs" handbook to help me navigate through this life I've found myself in.