(This is a cross-post from my new blog (a private blog open to my family and friends who want to follow our journey through SDR)).
(Photo by Megan McKinley Photography)
- The brain injury that caused the CP cannot be cured or reversed. It is permanent.
- Treatment options involve managing the spasticity (or tightness) in his legs. To date, Ben uses braces (also called AFO's - ankle-foot orthotic) for walking. He has had botox injections in his muscles to alleviate the spasticity and he has had serial casting done on both ankles to help stretch his calf muscles. All of these treatment options are temporary. Botox wears off quickly (within 3 months) and serial casting is something that is done over and over, mainly because as Ben grows his muscles get tighter and tighter.
- There is also a lot of therapy out there to help Ben learn to use his body to its optimum. Ben gets physiotherapy twice each week for an hour. He has also seen occupational therapy (as needed) and speech therapy. Other therapies that we have done include hippotherapy (horse-back riding) and conductive eduation. All of these HELP Ben to move better, but will never "cure" him.
I think that pretty much explains it. Here are a few links with more information if you are interested in learning more:
I love to answer questions about Ben...so if you have any, please ask!